Friday, December 2, 2011

December 2, 2011 Update

So I spoke to Joshi (and her goofy looking protoge) today and here's where it stands:
1: I let her know YES I WANT VNS ASAP let's do the surgery PLEASE
2: I STILL haven't heard anything about my video EEG

However, upon finding out that we had video documentation of tonic clonic seizures and partial seizure activity, she became very excited. There is a possibility that if we get enough documented seizure activity I may be able to bipass a trip to Stanford altogether, and go straight into surgery! (Which is AMAZING because I am SOOOOO ready!!) The Topamax is still causing tingling and a "pins and needles" sensation in my extremities but seems to be slowly going away, so for now I'm going to stick with the Keppra, Topamax, and Vimpat. I am not suppose to see her again for another eight weeks but between now and then I am suppose to record ALL seizure activity (both convulsive and parital) burn it on to a disc and drop it off to Joshi's office giving her a basic timeline and understanding of my seizures since she already has an EEG and knows it's frontal lobe oriented this seems a little more then necessary anyway. And having others take care of my kids for up to six days while I'm stuck in a medical center with nothing to do but read a book watch a movie or stare at a wall....ugh...

That about covers today's visit other then:
DEAR GOD ADVENTIST HEALTH SPRAY SOME AIR FRESHENER AND SANITIZER IN THAT WAITING ROOM PLEASE!!!!! FOR THE HEALTH AND WELL BEING OF YOUR STAFF AND OTHER PATIENTS......on second thought...just throw some gas on it, light a match and walk away.....blech....